Simple.

Sometimes I feel like the world has gone mad and I'm being swept away with it. Everything these days runs at such a fast pace. I find myself frustrated when it takes more than a millisecond for a web page to load. I rush around, for no particular reason other than the fact that I feel I need to.

But at the same time, I currently have an obsession with living simply. I want to slow down, appreciate the little things and take my time. I have a great respect for the Amish. If it wasn't for the lack of broadband I'd be over there like a shot.

I kid, I kid!

But in all seriousness I have been trying to simplify my life a little. I try and spend at least half an hour with my son outside or at the park everyday. Whenever possible I make things instead of buying things. I try to grow my own herbs. .

I have also decided to learn how to sew. I can't believe I have gotten to my late 20's without knowing how to operate a sewing machine. I have borrowed my mums sewing machine and plan to devour the instruction booklet and then get my housewife on. (I sound all confident now, but I can suspect in a few hours when I am being buried in a tangled mess of bobbins I shall be feeling far less cocky!)

Anyway back to the matter at hand. One thing I truly believe in is op shops. Oh op shops. I love them. You can get some crazy bargains at op shops, AND the money goes to a good cause. You can take your old clothes hanging around your wardrobe and come back with a new set. What is there not to love? A few months ago I paid $5 for a designer dress that still had the $200 price tag on it. I also got my son the very kids couch I wanted for $6 rather than the $25 in Kmart. I love how the clothes are worn in already, and I LOVE how you can get clothes you wouldn't necessarily find in retail outlets. I don't know if shopping at op shops is exactly simple, but its certainly something I recommend.

But living simple is more than just recycled clothes and home made items. Every day, no matter how busy the day, I make myself a cup of tea or milo and just.....be.

In hospital, according to the nurses, a hot drink could cure anything. Sad? Make yourself a cuppa. Angry? A cuppa will sort it out. Headache? Go and grab yourself a nice cuppa. And that old wives adage is true...a cup of something soothing does calm you down, does make you feel better.

So as I'm sipping my drink I don't stress about all the things I have to do. I look away from the towering washing pile. I ignore the dishes in the sink. And I just breathe, and drink, and savour those 15 minutes.

It's my time. It's simple.

NEW BLOG!!!!!!!!!!!

I have now officially moved this blog to the new location:

http://findingmysunshine.net/

Please come along and check it out :)

Being Mummy

You are my sunshine, my only sunshine

you make me happy, when sky's are grey

you'll never know dear, how much I love you

so please don't take my sunshine away

From the moment I saw those two pink lines on a pregnancy test my life became about someone else. Was I eating the right things? Was I doing the right things? Should I rest more? Should I exercise more? And it doesn't stop there. I still worry about whether I am doing the best for him and I expect I will his whole life

Yet this parental worry is probably the reason I am still here today. On my darkest of dark days I would look down at the beautiful baby we had created and pushed and forced myself to get up, feed him, change him and hold him.  I told myself that the blackness was my problem, and David didn't deserve to suffer the consequences of it. He held me together more than any medication or doctor could.

Each time I felt like ending it all I would think of my beautiful baby, of him growing up without a mother and how that would affect him later in life. I would take a deep breath, and give my little boy a huge cuddle.

When it became clear that I needed hospital assistance I refused to go anywhere I couldn't take my little boy. I was so frightened of being absent during such an important stage of bonding. Whether that is admirable or foolish i can't say, but thankfully for me there was a mother and baby unit where I was able to take him.

One of the major things I worry about is that he will inherit my illness. Bipolar disorder has a large genetic component and often runs in families. We probably won't find out until he is in his teens...but on the small chance he does develop bipolar disorder I hope I will be able to guide him through it. Sun, storms, rain or shine, I'll always be there for you my darling David. My sunshine.

This just in!

Exciting news! Well...I think so anyway ;)

I have been doing some work on this blog...and you can now register to receive posts by email! Just scroll down....yep...waaaay down there and you'll see the email subscription button.

Oh you can subscribe to my posts too! You'll find a subscription button at the bottom of the page too :)

I looked at my stats today and am pretty astounded as to how many people from all over the world have taken a look at my ramblings. So, to my readers...thank you! xx

Pity the only polar bear saying thank you is wearing a christmas hat....but you get the general picture :)

A cup of courtesy

Recently I have had a spate of incidents that have restored my faith in humanity. Everyone seems so busy nowadays. We are all too rush rush rush and go go go. We stare straight ahead and often don't notice, or don't want to notice what is going on in our peripheries. We're all guilty of it.

But one day I went to the beach, had an ice cream, took some pictures and came home again. About half an hour after I arrived home there was a knock at the door and two girls were standing on my doorstep. "Are you Rachael" they asked.
 "Ummm, yes...." I responded, completely confused.
"You left your wallet at the beach, we thought we would return it to you".
I was amazed, I didn't even notice I had lost the wallet, and these two girls had driven personally to return it to me (they explained they would have taken it to the police station had I not been home). I felt like I needed to give them some sort of prize I was so grateful. But in the end I just thanked them profusely and thanked my lucky stars after they left.

A few weeks ago my car broke down in the turn off lane on a major road. Of course, this caused complete chaos. But what I wasn't prepared for was the level of abuse I copped for being in a situation I had no control over. People honked, swore, rolled down their window to scream at me. Seriously? Like I chose to be in this situation. I was alone and there was nothing I could do. Half of me wanted to dissolve into tears and the other half wanted to get out of the car and hurl abuse back.

But suddenly a man appeared at my window. "Need a push?" he asked.
"Thank you!" I cried with gratitude "everyone is getting so mad!"
"They are idiots, this isn't your fault." he gave me a friendly pat on the shoulder "it'll be ok".
So he gave me a push onto the grass and left when he knew someone was on their way to help with the car. I must have thanked him a million times.

So these things happen, and I firmly believe in passing the kindness on. Kicking the crowd mentality. Stopping when everyone else walks by.

So one day I was walking around in my city centre, having just had a rather nice satisfying lunch with my husband and son. As we got to the car park there was a homeless man sitting on the curb, his head in his hands, a sign next to him saying he was homeless and hungry. Every single person walked past, including myself.

Suddenly I stopped, told Steven I would be back in a sec and I marched back to the homeless man. It had gotten to me. I had just spent a good $50 on a nice lunch, and this guy hadn't eaten for days.  He looked incredibly young, he looked like he could be my friend or my brother. I know lots of people say not to give homeless people money because "they will just buy drugs". Perhaps they are right, but something inside of me that day couldn't take the chance they are wrong.

So I marched up to him, emptied my coins into his hands and then gave him every item of food I had in my bag (as a mother I tend to have all sorts of random foods ready for any emergency). He looked absolutely dumbfounded  then gave me the most heartfelt "thank you." I have ever heard. I wasn't prepared for what a few muesli bars and a handful of coins mean to some people.

"Good luck" was all I really thought to say before racing off to catch up with my family. I thought about him a lot that day.

I'm not perfect, I'm no saint, I have walked by a hundred homeless people before and stared straight ahead. But on those busy busy busy days I try to remember the ones who need help. On the baddest blackest of days I try to think of those who are in a far worse situation. And I do the best I can, when I am able, to be a good citizen, to consider those less fortunate than I, and to not forget just how lucky I am.


So thank you to the girls who returned my wallet, to the guy who helped with my car and the man who helped us with our flat packs. And as for the homeless man, I know it wasn't much but I hope you went a little less hungry that day, I hope you find yourself a warm bed sometime soon.

All mixed up and no place to go...

Another mixed state. That's what my medical team are diagnosing my last episode. Partly psychotic, partly hypomanic, partly irritable. But I'm emerging now and that's the main thing.

Today is the first day I have taken only one Lorazapam to dull my constant restlessness. I simply couldn't sit still, my thoughts were racing a million miles a minute, but unlike my previous hypomanic episodes I felt irritable and annoyed. It was an intensely unpleasant experience.

So my meds have been changed, my Lithium increased, and I feel SO much better. I have switched seroquel for olanzapine. Both antipsychotics, but the olanzapine doesn't zombify me. I wake up and feel like I've actually slept. I dont think I realised how tired I was until I came off the seroquel.

But there is still a part of me that hates the drug regime. Lithium, desvenlafaxine, olanzapine, lorazapam, seroquel, tamazapam...all for me? The pharmacists know me by name, and dole me out my plethora of pills in weekly supplies. I feel like a drug addict. When people ask if I have ever done drugs I just tell them I don't need to. I get natural high's and I get my pills for free at the pharmacy ;)

I will start cutting it down again, once I am full recovered. I'm grateful I have found drugs that work. It's just sometimes I wish I could walk around without pills rattling inside me ;)

A recent photo of myself ;) 

They say the episode was brought on by stress. Your body reacts to stress through chemical changes which can skew the happy chemicals in people like me. I don't really care. I'm enjoying being able to sit down and actually write. To read a little. To not feel like running a marathon 24 hours a day.

And I'm ok. I truly am. I feel somehow that I had a negative energy that needed to be purged through this mixed state. And now the tears have dried, and I have room for positivity again. That black feeling in my chest has gone...and oh how wonderful it is to breathe.

How wonderful it is to be me again.


p.s. Did I tell you I finished my thesis draft? :)

Cake, anyone?

Thought I would share a journal entry from when I was manic in hospital. It makes me laugh...

3/5/2012

To be honest, what the docs call my 'mania' is pretty damn fun. Well mostly. There are some unpleasant aspects to it. But after enduring months of that monstrous depression 'mania' feels good! I want to make a cake. I want to DO stuff.

I didn't realise what was happening until I was immersed in it. And once I was in it there was no way I wanted it to stop.

It started with lots of ideas. I couldn't


Yep. That's it. Couldn't even finish a sentence, never mind a journal entry ;)

Purple People

“Susanna: I am a crazy girl. Seriously.

Tony: You've been in a hospital?

Susanna: Yes.

Tony: Do you see purple people? My friend, he saw purple people. And so the state came and took him away. He didn't like that. Some time went by and, and he told 'em he didn't see purple people no more.

Susanna: He got better.

Tony: Nah, he still sees 'em”.

-          Girl Interrupted

So apparently I am psychotic. My own clinical knowledge says the doctors are right. But my own intuition convinces me they are wrong. Honestly, I feel fine. This so called ‘delusion’ of mine has been going on for a good decade or so. And although it isn’t terribly pleasant at times, I’m coping fine. It doesn’t affect anyone but me. I’m functioning. I’m a good mother. I’m not socially inept (well not completely anyway ;)). I don’t feel that I have lost touch with reality. It’s not like I am running around town in a bed sheet proclaiming to be Jesus.

But that’s what they always say about crazy people. They always think they are sane.

I had an emergency meeting with my new psychiatrist; Dr. Very Long Name, and my psychologist on Monday after the revelation that I could be mad. I sighed heavily during the interview “Oh I knew I shouldn’t have told anyone about this...now you all think that I am crazy!”. “I don’t think you are crazy”, Dr. Very Long Name replied “I think you are psychotic”. Well. That’s comforting ;)

Interestingly they have now assigned me to this “Hospital in the Home” program. I don’t know the details, but apparently nurses will be visiting me daily. Now this is interesting because as I said before. I feel fine. I have lived with this ‘delusion’ for a very long time. Truly, I’m ok.

Yet when I wasn’t ok, when I was desperate for help I didn’t receive it. It’s a strange world.

They have got me on a new drug. An anti-psychotic. Abilify. Worst drug ever! Imagine being so tired you can barely stand up. Then imagine being so restless you can barely keep still. Then chuck a few achy joints into the mix. That is Abilify. I took it for two days then gave up. I have a toddler to look after, a thesis to write, and a goddamn life to lead. I’d had enough of that bullshit.

I don’t believe medication will stop this ‘delusion’. Mostly because I don’t believe I am deluded. I’m wondering if the only way to get out of this is to claim recovery. Perhaps I will have to pretend that I can’t see purple people anymore.

Clean

I am a fanatically clean person. Seriously, it's bordering on ridiculous. From an incredibly young age I would get up early to clean the family home (not that it needed cleaning!). I actually enjoyed...yes..enjoyed..boxing up everything in my room, vacuuming and cleaning the furniture and putting everything back. During my first couple of years of uni I used cleaning as a sort of reward system for studying. I would not allow myself to clean the house until after I had finished my allotted study for the day. The torture of having to study in an 'untidy' house propelled me into getting my work done in a productive fashion. It's actually amazing that I have been formally diagnosed with Bipolar Disorder as opposed to something like OCD ;)

Me...on an average cleaning day...;) 

So why am I telling you all of this?

Before I went into hospital my cleaning standards started to slide. Now don't get me wrong, our house never turned into something out of Hoarders...but it was untidy, for my standards anyway. I cleaned everything I needed to for my baby; his bottles, his clothes, his change table, his bowls. But I gave up on things that weren't directly related to him. What's even stranger than the fact that I stopped cleaning was the fact that I didn't care.

I started paying little attention to my personal grooming. Sometimes I didn't shower or wash my hair...I lived in tracksuits and slippers unless I had to go out. Now this isn't anything unusual for anyone who has just had a baby, but it was unusual for me. Even in the darkest most horriblest sicknesses I have always showered. God forbid I shouldn't wash my hair every day! So this was unusual behaviour for me.

So I wasn't cleaning, wasn't washing my hair regularly, wasn't eating and wasn''t sleeping. A few times a social worker came to visit me and I would tear around the house tidying before she came. I was convinced that if she saw the 'mess' I was living in she would take my baby away.

I think I collapsed once I was admitted to hospital. Tracksuits and slippers it was. Sometimes nurses had to remind me to shower. I was hospitalised, convinced the nurses were plotting against me, exhausted as all hell and frightened. My usual cleanliness just wasn't a priority.

But one day I walked into the hospital kitchen for a drink. There were no glasses in cupboard. At that moment I heard the dishwasher beep and I went to go and retireve a glass from there. I walked away and then turned around. The dishwasher was irking me. So even though it wasn't technically my job, even though they had an employee to do it, I started to unload the dishwasher. Then for good measure I reloaded it again and wiped the surfaces down. Satisfaction!

Later I went into my room. I HATED the particular bed sheets that I had that week. They looked disgusting, felt disgusting and were disgusting. Fed up, I went to get a nurse and asked if I could change my sheets. Astonished, the nurse went to the locked linin cupboard and I choose pretty new sheets. Bliss!

And so it went from there. As I healed I began to ease back into my former life. I cooked for the patients and staff. I started using my own cloth nappies and washing them at the hospital rather than using disposables. I cleaned my room every Sunday and changed my sheets. I started to feel like I was *doing* something once more. Like I had a very small purpose.

And somewhere a long the line I went from someone who was looked after in every sense of the word to a person who could look after another. I went from someone who couldn't be trusted to be left alone with a pair of nailclippers to someone who used knives, unsupervised, daily. I showered, I even shopped for new clothes, wore makeup and the nurses commented on how different I looked. But I didn't look different at all. I looked like me again. The way I was supposed to be.

Always Room for Reggae...

For most of my life I have sung in various bands and choirs. When I was about 15 I sung in a band for about three years. We had a great time, did a few gigs and began to write our own songs before things inevitably turned pear shaped, as they so often do.

One Thursday night the four of us rocked up to our rehearsal room. A very hip looking, dreadlocked sporting, guy was already in there, packing up his drums. We set up and began to play. Dreadlocks was taking an inordinately long time to pack up and he eventually sat down properly to have a listen to us.

What we weren’t prepared for was his critiques.

He was very knowledgable and very experienced, and before we knew it every one of us had been given some helpful hints on how to improve our game. Our drummer wasn’t quite so sure about it all.

“We’re a rock band”. He said, “That’s a reggae beat...I’m just not sure that it will work...” he said uncertainly.

“Nah this beat is the bomb man! Just flow with it, trust me.” Dreadlocks persisted.

“Dude. I just don’t think reggae is going to work for us.” Our drummer shook his head.

“Dude.” Dreadlocks said. “There is always room for... reggae!”

Of course, at the time, the bassist and I were killing ourselves trying to suppress laughter. The sight of our stubborn AC/DC loving drummer trying to be persuaded to rock a reggae beat. To his credit he did rock the reggae. At least, until Dreadlocks left the room. ;)

Where am I going with this? That phrase “there is always room for reggae” has stuck with me over the years. He was such a happy go lucky cheerful guy. I’m smiling now just remembering him. And I think he is right. There is always room for that smooth, chill, “don’t worry, be happy” beat, as the background to all of our lives. There’s always room for that relaxing on the beach listening to Bob Marley feeling. So the next time I am stressed, running around, and exhausted I will remember those words of advice.

There’s always room for reggae.

Stockholm Syndrome

Some of you say, 'Joy is greater than sorrow,' and
others say, 'Nay, sorrow is the greater.'
I say to you, they are unseperable.
Together they come, and when one sits alone with
you at your board, remember that the other is
asleep upon your bed. Kahlil Girbran

The world is full of peculiar paradoxes. Have you ever touched something so cold that it burned your skin? Or laughed so hard you cried? Have you ever felt so much pain it’s pleasurable?

I think I have a touch of Stockholm Syndrome. I’m in love with my captor. I hate mania, I hate it, I hate it, I hate. But oh how I love it too. Flat as a pancake I find myself yearning for the high’s. Knowing full well the consequences of doing so.

For me the high brings such revelation, I suddenly understand my life and the world around me, everything makes perfect sense. But now nothing makes sense. I don’t understand how I am supposed to feel. I don’t understand how I got here. I don’t understand why bad things seem to happen to good people.

I don’t feel, when I know I should.

I just want to feel that manic/hypomanic energy. I want to be productive. I want to feel the unabashed joy and love. I want to dance because the music means something to me. I want to understand the universe again.

But will that come with a price of irresponsibility, risk taking, and psychosis?

Probably.

When I was about 18 I went through a period that I can retrospectively diagnose as mania...or perhaps hypomania. For about six months I didn’t sleep, I wasn’t tired, I became loud and argumentative in classes, I completely changed in personality,  I drunk too much, I got myself involved in all sorts of risky situations. I cared about very little.

And that is the crux of it really. I want to care. I want to feel those high’s but I want to care for my family and for myself. I want to be the best mother I can for my son, and the best wife I can for my husband. I want to be the best I can be, and I can’t do that when I am high.

So I keep taking the medication. If I were young, if I were single I would probably experiment with skipping doses. See if I could find a happy medium. But as a mother I can’t possibly risk that.

So I stay here, flat and stable. I’m in love with something I shouldn’t be. I’m in love with something that isn’t real. I’m in love with something that could potentially destroy my life.

But more than that I’m in love with what I have, my beautiful boy and husband. And so I will never succumb to the infatuation. For the pleasure, and the pain, are inseparable.  

So, this is pressure?

I just cried. And yes, I hardly ever cry. But I cried that awful raggedy gut wrenching sob that has no place in front of others. So I cried it alone. And now, here, with swollen eyes and mascara over my hands I start to wonder why.

I spend so much time at the moment devoid of feeling. The highs and lows have levelled out and I like it that way. I never feel anxious anymore, I rarely feel upset. Others on mood stabilizers complain of the flatness, but I enjoy it. After the trauma of my last episode flatness is relief. The flatness is freedom for me.

But that doesn’t mean I am not affected by experiences anymore. I seem to breeze through a particularly stressful time and then suddenly become briefly incapacitated. I suddenly feel all of the pain “It HURTS!!” I recognise, quite angry at this realization. Then I cry, or I dissociate, or I hear voices, or I dip my foot into hypomania. But it always passes. And then I sail away on the Lucky Lithium once more, feeling no sea sickness even in the fiercest of storms.

I realised the moment I dried my last tear what this was about. For some time I have felt like I am being pushed into a box that is too small to cage me. I feel as though I am constantly running through time trying to get everything done yet always arriving late. I feel as though my internal resources are being sucked from me and I’m left running on empty.

Pressure. That’s the word of the day. Most of the pressure I feel is self inflicted, some of it isn’t. I believe all mothers will relate to what I am saying. It’s the daily grind, the balancing of work with family. It’s making sure there is food on the table and laundrey in the cupboards. All normal, everyday pressures.

But having a mental illness affects people in funny ways. I suddenly realise that I feel intense pressure to perform as a parent. As an individual with bipolar disorder I assume I my parenting skills will be scrutinized and I feel I must prove to everyone that I am a good mother. I thought many strange things when I had psychosis, but one of the scariest was that the police were after me and they were going to take my baby away. I know I was psychotic and this was a delusion but I will never forget that terror of losing my child. I feel I must prove to everyone around me that I am capable. What pressure to put on yourself!

Clearly David hasn’t received my memo, as he has chosen this particular shaky time in my self development to become a perfectly normal naughty toddler. I have left social events with David, almost in tears, after a typical toddler tantrum (his, not mine ;)). But instead of thinking “he was so NAUGHTY!” I think “Everyone must think I’m a terrible mother!”

But I forget I am not the only mother of an almost two year old. I forget all mothers go through this experience. Last week as I ‘ignored’ Davids terrible tantrum on the floor another mother came up to me. She gave me a grin and gestured to David “You’re doing the right thing” she said. I wanted to hug her.

But I know I’m doing the right thing. I know I’m a good mother, and that my illness has never had any impact on my ability to parent. I know I have nothing to prove. But just like I can still feel the fear of a previous delusion, I still feel pressure to prove what I already know I am.

Hello, Psychosis!

I have been waging a war for the past three months or so with my Seroquel. God I hate that stuff. It's an antipsychotic whose main effect seems to be what I like to call "zombification".  

I have been on the stuff for almost a year now, and I suppose I have built up a tolerance to it. But I still seem to feel completely exhausted on it.

Don't get me wrong, it's GREAT for getting to sleep. The problem comes when the next day arrives and you feel as though you are positively wading through the day, counting the hours until bedtime.

So I’ve gotten into this completely stupid routine (not advised by my doctors either - when will I learn?). I will stop the Seroquel for a few days in the vague hope that I *will* get to sleep without it. I don't. After three days or so I reach my limit, reach for the pillbox and reach for my pillow. And then I continue to reach for my pillow the following day. And so the cycle continues.

 Anyway the other day Steven and David went out for a few hours. My plan was to get some quality work on my thesis done without David rampaging around the house. I sat down at the computer but started to feel a little funny. Funny strange, not funny "ha ha" - although I suppose it depends on how you look it. I started to tired. Normal. Dissociate. Normal. Hear voices chattering in my head....so not normal.

Yep that's right. I started to hear voices. Chattering. Grinding their horrible teeth on metal. It was horrible, and peculiar, and horrible. Now I have experienced a lot of crazy things in the last decade or so, but I have never heard voices in my head. I started to feel alarmed, the voices were so noisy that I actually couldn't listen to my own thoughts. Somehow I made it to my mums house, where according to her I staggered in shaking from head to foot, barely able to walk.  

She was alarmed too. She had never seen me like that. Somehow I have managed to hide the nasty sides of my illness from the people closest to me (aside from Steven of course). I'm lucky in that I dip in and out of psychosis the way others dip in and out of shops. I'm never completely psychotic. I'll have an episode, then recover. When my psychosis was out of control in hospital I refused visitors except for Steven. 

Anyway she was alarmed and immediately called Steven to come home. She started saying she thought I needed to go to hospital which upset me. There was no way I wanted to go, and heaven forbid, get admitted again. How would I look after David?!

 Steven came home and calmed me down, he coaxed me into taking some Seroquel and within about half an hour I was feeling much better. Yes, Seroquel is both my villian and my saviour. Friend and enemy. It makes me feel tired but brings me back to sanity.

I saw a psychiatrist who wasn't sure whether sleep deprivation or the missed doses of medication were responsible for my momentary freak out. Either way I am back on the seroquel. Full time. Bleurgh. I figured as much as I hate feelings washed out, it's sure as hell better than being immersed in a world of chattering people chomping on metal.

 It’s been a while since I’ve had any *incident’s* and I was hoping I was completely stable. I guess I just need to come to terms with the fact that these sort of things may happen occasionally, but they are controllable, and I AM okay. 

Some Days Are Easier Than Others

I have to say I am struggling at the moment. Not in terms of depression or mania. Not in anxiety or stress. But from pure exhaustion.

I’m struggling to understand whether the exhaustion is mental or physical. Medication induced or cumulative from the hell last year was. All I know is that I crave my bed at times of the day when I shouldn’t. The early morning enthusiasm I have always possessed has deflated into a bleary eyed being going through the motions. Sometimes, and I know this is bad, I choose not to eat because the very thought of preparing lunch exhausts me.

I’ve tried experimenting with my medications. The anti-psychotics are my biggest suspect. Naturally, though, when I skip my dose I end up awake all night. My insomniac ways back again. This I could put up with, but the symptoms of dissociation the following day I can’t. So I take the pills again, and continue wading through my days.

This just wont do though. Despite the fact that I have an active toddler to care for and a house to run, I also have a thesis to write. Yet I stare at the page, immersed in a cloudy brain fog, wondering if I will ever possess the mental strength to finish it. It annoys me. All that time spent researching, waddling into uni eight months pregnant to meet participants, meetings, leaving behind my eight week old baby to run classes and collect data at uni, hours fighting with my statistical software, ....all that goddamn dedication, and now I can’t find it in me to do the best, easiest, most rewarding part!

“You” my supervisor said a few months ago, “have worked so hard on this. You have put much more work into this than the average student. Now you just need to get your act together, write the darn thing and get the mark that you deserve”.

Ok, so she didn’t tell me to get my act together, but I’m sure she was thinking it. ;)

I’ve made a start I suppose. I sat down today, reread the 19 pages I have already written. I read a few key journal articles. Corrected a few mistakes. Forced myself to sit at my desk, put on my glasses (because that surely means business!) and just get on with it. I haven’t achieved much, but it’s more than yesterday, and I suppose that is what counts. I’ll chip away at it. A bit here, a bit there, and hopefully one day I will be surprised to find a finished product.

Over the last few years I think I have tortured those around me enough with my thesis. “It’s hideous! I actually think it may kill me”, punctuated with a dramatic flop onto the floor (much to the alarm of the family dog). An epiphany three hours later where I talk with great excitement about “the most interesting thing I have learned all week. Potentially all year. But let’s not get ahead of ourselves yet.” Yes, it’s a love hate relationship. A bipolar state within itself. I’m not the first and won’t be the last to feel this way. Enough is enough, and I must get it done.

As for the exhaustion, it’s still here. I’m hoping it’s merely a medication glitch that can be dealt with at my next appointment. If it’s a psychological thing – I guess I just have to keep riding this wave.

50 Shades of Crazy

You know what I’ve found? Once you’ve been crazy, you’re always going to be thought of as crazy. How many people have read the works of Virginia Woolf? I'll bet not as many as the people who know she drowned herself. Van Gogh? Wasn’t that the guy that cut his own ear off? I’m sure Amy Winehouse will be remembered more for her drug fuelled antics and self mutilation than her musical talent. 

No matter how much you try to prove to people that you ARE fine now. No matter how regularly you take your medication. No matter how happy you are, or how stable you feel. You will always be the crazy one. A two month stint in a psychiatric hospital isn’t a life experience. It’s a f***ing life sentence.

Freud Style

I’ve always been fairly dubious about psychotherapy and psychoanalysis. It’s always conjured images of darkened rooms and couches and Freud smoking a cigar implying I have penis envy. I suppose my main objection to psychoanalysis is Freud himself and his relentless preoccupation with sexuality. 

Aside from that I don’t particularly feel talking about oneself, complaining about problems and ultimately blaming misfortunes on others – usually our parent’s (because of course, it is always our parent’s fault) for years could be particularly helpful. I’ve always took a stand that if there is a problem, it is best to face it head on. To do something about it, rather than simply talk about it and how it makes you feel.

The psychoanalytic style also tends to link present problems to past traumas. I have been fortunate enough to escape any significant childhood traumas. I have a lovely family and friends. I have nothing in my life to complain about. So how is this going to work?

Still, upon leaving the hospital my psychiatrist was keen for me to try psychotherapy. And what was I to refuse? Over the last decade I’ve tried it all, group therapy, individual therapy, mindfulness, meditation, CBT, DBT, EMDR (and on one particularly frightening moment in hospital I was offered ECT). Why not add a bit of psychotherapy to the mix. Why not kick it Freud style? At the very worst I’ll have an hour to talk about myself each week!

As it happens, last week during my weekly appointment (where there were no couches or cigars) , I was considering the topic of homosexuality.
“I don’t think I could ever live with a woman...in that way.” I mused, settling back into my chair.
“Why’s that?” my psychologist queried.
“Well. Aside from the obvious benefits...” I said with a wink “men are just terribly useful for some things.”
“Like what?”

“Fixing things? Carrying heavy stuff?” I paused, deep in thought. “Killing spiders?”

My psychologist burst out laughing, causing me to giggle as well. ”I’m sorry, I shouldn’t be laughing...do you feel that a woman wouldn’t be able to kill spiders?”
“well, it’s not that they aren’t able. It’s just probably that they wouldn’t want to, perhaps even less so than I.”

“What about a woman who fit into the classic ‘butch’ role? Would you concede her able to kill spiders?”

“Oh no.” I said decisively. “I’m not attracted to butch women. It just wouldn’t work out.”

My psychologist hid a smile. “You’ve obviously given this a lot of thought.”

“Of course. I think about everything. I’m sure Steven thinks that a lot of the time I’m just laying around staring into space, but I’m actually thinking about all of these things.”  I paused. Then suddenly it hit me.

 “The thing is. I feel I am always the one who cares for other people. Even the work I have chosen - paid and volunteer -  all revolves around looking after others. I’m the one who listens to peoples problems. I’m the one who tries to make it better. I’m the one who puts all the play equipment away because there is a snake living in the shed and the girls I work with are scared of it. It’s sexist, and against all I stand for in terms of woman’s empowerment. But when I come home at night I want someone to be protecting me. I want to be the one looked after. I’m not saying that a woman couldn’t do this, I’m not saying that I don’t look after my husband. But there is some deep part of me that needs to be protected and cared for. And I get that from a man. I get that from Steven.

And perhaps.” I continued. “perhaps that is why I feel such a great need to pursue my femininity. To wear pretty clothes. To cook and bake and provide my for my family within my traditional domesticated feminine role. It’s against all I stand for! I’m writing a thesis on sexism for God’s sake, and yet I’m conforming to my gender stereotype. But perhaps if I showcase my femininity to Steven, he will continue to provide that patriarchal protection I crave.

And then I rebel. I rebel against myself by pursuing academic goals, feeling resentful that he is the breadwinner and not I,  and yes, killing my own spiders and fighting my own battles. Because I don’t want to be the damsel in distress. I want to be the one who saves myself, who provides for myself and my family. I am very proud, I don't like help. But I’m only fighting against myself! Steven has loved me through crazy and he’s loved me through sane. He loves me just the way I am. Whatever that is.”

And there it was. A revelation. A thought, a feeling that I never knew existed. I understood myself. I laughed because it was so silly. And yet so important.  

Every week of psychotherapy that passes, I learn more about myself. Somehow I understand myself and allow myself to let go of the pain. It’s an incredible tool for personal growth, and I would recommend it to anyone. My prejudices towards psychoanalysis have lifted. Despite studying psychotherapy indepth with uni, I wasn’t able to understand it fully until I experienced it for myself. It’s a reminder to withhold judgments. Never judge a Freudian textbook by it’s cover ;) 

Art Therapy

It was in hospital that I first started being creative again. In a previous life I participated in a number of  creative activities; I sung in bands and choirs, wrote music, learned instruments, painted, did scrapbooking and card making, enjoyed sewing and knitting and writing. But somewhere along the way I started to let go of my hobbies. I didn’t have the time, I didn’t have the energy. I had an assignment to write, a newborn to care for. Somehow the little things I enjoyed became less and less important. I became less and less important.

In hospital I started knitting, I found pastels and drew wild colourful pictures, I painted and wrote and brought in my guitar to sing. I don’t profess to be in any way to be any good at these things, it was more a release. I could draw or write how I was feeling far better than I could say it. I loved sketching frantic wild pictures and then blowing the rainbow dust off of my hands. It was about creation and expression rather than production of anything to be proud of. 

I realised recently that I have neglected the creative side of me. That part of me of me that was so important and so therapeutic lay dormant. Looking back I have rarely sung or created any type of artwork for anyone but myself. During my school years I became very involved in singing, so much so that it ended up a chore. Another performance, another exam, another piece to learn. Something I loved started to become an effort. So when I left school I vowed to never succumb to pressure again. If I joined a band it was for me. If I painted or sewed or knitted or scrapbooked, it was for me. Steven has not heard all of the songs I have written, perhaps he never will. Those songs are important, and they are for me, not to showcase.

So I have started unlocking that creativity once more. I sing and write every day. I have started crafts again, and have many little projects that I am undertaking. I’ve moved all of my art materials into a cupboard that is easily accessible.

Suddenly I feel content. If I’m angry, or sad, or happy, or excited I have an outlet. I can write about it, sing about it, paint it. I can get the feeling out and understand it. I can look at it. I can release it

Yesterday I was doing some crafts with my Mum. It was the first time we had done anything like that in years and I was in my element. I got all my materials out, planned my design and then gleefully muttered to myself “I can tell already this is going to be GREAT”. Mum laughed, “you always were so over confident about your work”. I thought about it for a while. I did used to feel fairly optimistic about my creative activities. But I don’t think it was to do with thinking I was especially talented or artistic. I enjoy the process more than the end result. I enjoy he feeling of creating something through words or art or music. But most of all I know that if it turns out to be a disaster I can chuck it away and start again. There’s always another blank canvas.

There’s always room to start again.

Flashbacks and Nightmares

I keep having these flash backs. It’s strange. I’ll be going about my normal business when suddenly it will hit me. I’ll feel like I am *there* again. It’s not entirely unpleasant. But not entirely pleasant either. For the briefest moment I’m propelled back into the past. I feel it again, the blackness, in the pit of my stomach. But at the same time I know that I’m safe now. I’m OK now.

In one of the flashbacks I have just been admitted to hospital. I’m sitting on the bed, my head resting on my knees. I can’t describe how I feel. Relieved. Finally someone believes me. Finally someone is going to help me. Perhaps I have a chance. Perhaps I can keep going. But I’m so tired. I’ve held myself together for so long. Now that I’m safe, now that there are people looking after me I feel I may simply fall apart. Steven wants me to unpack my suitcase so I feel more at home. But I’m just so tired. I had to tell people today that I was going to hospital. I had to admit that I had a problem. I had to pack a suitcase not knowing when I would be home again. What if the people out there judge me? What if they think I’m weak.  A failure. Hospital is my last chance. My last ditch effort at saving myself. What if it doesn’t work? I’m so incredibly exhausted. I just want to sleep.

In another I am in the art room furiously painting a picture. I’m talking to my doctor who is carefully colouring in a stained glass window. I’m asking her if I am crazy. I had a dream about South Korea and the news article on TV was about South Korea. I walked in at that very moment. Surely that means something. Why would I dream about South Korea if it didn’t mean anything? I must be able to predict events. My dreams must be predictions. My dreams are important. I’m telling my doctor that I must be crazy. I must be crazy because of what I am thinking. I’m telling her how angry I am. She tells me this is the first time I have talked to her. Said something other than ‘I can’t keep going’. She says this is progress.

In another I am waking up from a vivid nightmare. I’m soaked in sweat, my hair sticking to my forehead. I’m hyperventilating. I want help but I remember I am on isolation and can’t leave my room. I can’t breathe. I pace around the room then spy the emergency call button. I’m just about to punch it with my fist when a nurse opens the door. I’m shaking and pacing as the dream haunts me. I trip over my dressing gown and the nurse steadies me. I just can’t breathe. I tell the nurse about my dream, how I need to put pictures of my loved ones on the wall. If I don’t put them on the wall they will die and I will be responsible. I could have prevented it. But I don’t have pictures, and I don’t have blue tack. The nurse doesn’t understand how important this is. She gives me some pills but I’m scared to fall asleep. She holds my hand and stays until I drift away again.

As soon as the flashbacks arrive they leave again, and I’m left with a strange sensation. No matter how I try to push the memories away they bubble up to the surface when I least expect them. Often things, moments, that I thought I had forgotten. A little reminder. A bitter aftertaste. A motivation to keep myself stable.  

Bipolar: The Facts

All this time I’ve been talking about bipolar, mania and depression...but I’ve never actually formally described what these things are. I suppose I have assumed my expression of the experiences I have had have provided a description of the disorder. And I do believe experiences trump a cold clinical description any day. But there is so much misunderstanding and stigma surrounding Bipolar disorder, so today I thought I’d look at the facts. :)

Bipolar disorder is a universal mental illness. It doesn’t discriminate. People of all ages, nationalities and from all walks of life can experience bipolar. Perhaps this is due to the genetic component of the disorder. Scientists have identified several genes, including the Dysbindin, Neuregulin and G72  genes which when damaged contribute to Bipolar disorder. As such, bipolar tends to run in families, although episodes can be triggered by significant stressors, and in women, childbirth. It is estimated that about 1.1% of the population suffer from bipolar disorder

People with bipolar disorder are 50 times more likely to commit suicide than the general population. That is huge. The suicide rate for the average population is around 0.01%, in the Bipolar population it is around 13%. What’s more, nearly half of individuals with Bipolar disorder will attempt suicide at least once. Extreme depression and psychosis resulting from lack of treatment are the usual cause for suicide.

A bipolar depression is nothing less of horrific. Unlike Major Depression, often there is no apparent cause for bipolar depression. A bipolar depression can persist for months and may become so severe that psychosis results. Traditional anti-depressants used alone generally have little effect, and can even trigger manic episodes. Unfortunately, because many individuals affected by bipolar seek help during depression rather than mania (which may be enjoyable), they are often misdiagnosed with Major Depression and treated accordingly. Individuals who present with mania may be misdiagnosed with Schizophrenia. Consequently bipolar is one of the most difficult mental illnesses to correctly diagnose.

Symptoms of mania can include pressured speech (or talking REALLY fast), racing thoughts, needing less sleep and not feeling tired, grandiose beliefs (for example, I started to believe that I was superior to everyone else because I didn’t need sleep to function but they did), and general euphoria. People may become impulsive (e.g. spending lots of money, quitting their job) and promiscuous.  But there is a dark side to mania; during a manic episode people can quickly turn irritable and even aggressive. They may experience hallucinations and delusions.

There are three main types of bipolar disorder; Bipolar Type 1, Bipolar Type 2, and Cyclothymia. Bipolar 1 is often described as your classic manic depression. Individuals experience episodes of depression and ‘classic’ mania. Episodes are generally severe (particularly manic episodes) and often result in hospitalization.

Bipolar 2 is often described as a less severe form of Bipolar. But I’m not sure I agree with that. People with Bipolar 2 spend more time experiencing depression, which can be incredibly severe. While individuals with Bipolar 1 may have months or even years between episodes, those with Bipolar 2 are more likely to rapid cycle between episodes and experience chronic mood swings. People with bipolar 2 are also more likely to take their own life. However people with Bipolar 2 do not experience full manic episodes. They experience hypomania instead. Symptoms of hypomania are similar to mania, but on a lesser scale, and there is rarely any psychosis. As it was described to me once; during a board meeting someone with hypomania may talk excitedly and present many ideas. On the other hand, someone with mania may dance and sing upon the table. Hypomania is difficult to detect because it can be disguised as productivity. Hypomanic individuals often feel creative, complete many tasks and feel exceptionally confident.

Cyclothymia (or ‘Bipolar Lite’ as Stephen Fry once described it), is a milder of form bipolar where individuals experience mood swings from mild depression to emotional highs chronically over many years.

If you are wondering what type I am...I’m not actually sure ;) Out of curiosity I have asked two psychiatrists whether I am a Type 1 or 2 and neither were able to answer. One told me that she didn’t believe in ‘typing’, that if an individual had bipolar, they had bipolar. The other told me that it was very difficult to fit people into a specific box, that everyone experiences their own illness differently. Looking at the symptoms I can’t even decide for myself what I would be, and I’m guessing this may be the case for others too.

So there it is. A description of Bipolar disorder. I promise I will write about something more meaty next time ;)

An accurate representation of Steven and I ;) 

Toxic

I'm fine, but I'm bipolar. I'm on seven medications, and I take medication three times a day. This constantly puts me in touch with the illness I have. I'm never quite allowed to be free of that for a day. It's like being a diabetic.

- Carrie Fisher

Hats off to Carrie Fisher! I couldn’t have said it better. For me, medication is a daily chore. No different from brushing my teeth or making my bed. I’m on four different medications twice daily. I take up to ten pills a day.

I am bipolar in my attitude towards medication. On good days I will dutifully take my pills, thinking how much they have helped me. On bad days I will complain about them, how they make me feel flat, how they shackle my creativity, how they nauseate me.  Perhaps I’ll ‘forget’ to take a dose.  But it’s less of a choice and more a responsibility. A trade off between side effects and stability.  I have a little one to look after now.

After a night of violent vomiting a few weeks ago, I came to the conclusion that I must be suffering from lithium toxicity. It seemed the only logical explanation for my nausea, mood swings, and shakiness. My recent bout of illness and dehydration could have easily resulted in concentrated blood levels. It all made sense. Lithium toxicity can be serious, even fatal. My nurse was at my place to assess me within an hour of my phone call to the hospital.

I was told to stop the Lithium, and because I was worried (and because I was angry at the potential effect that medication had caused) I stopped all other medications as well. That was a mistake. I spent the weekend grumpy, depressed, and dissociating so badly that it was hard to walk.

When the blood results came back I wasn’t toxic at all. In fact, quite the reverse. My level’s were too low. So I restarted all the pills and quickly returned to my ‘normal’ (but really, what is normal? ;)) self.

How did my lithium levels become too low? Partly, I suppose, due to the IV fluids I was given during my recent hospital visit. But mostly, I suspect, due to my careless attitude towards the medication. Skipping a dose here, a dose there. I’m not crazy anymore. I don’t need that stuff.

I seem to hold a deep distrust in the opinion of the medical profession. Somehow I believe my limited knowledge on psychopathology and pharmacology is superior. Then I get upset when my  medication experiments backfire. Funny that ;) Recently I have been seriously questioning my diagnosis. Am I really bipolar? Was I really that unwell? Perhaps it was all a strange dream. Now, while I am stable, I simply cannot believe I became that unwell.

I talked to both my psychiatrist and psychologist this week about this issue. I remarked to them that I felt like I was making the whole experience up. I can’t imagine feeling that depressed, or that unstable. I felt angry that I couldn’t remember aspects of my experience. But the recollections I had and others provided just didn’t seem like *me*. Rather than telling me to move on, that the past is the past and the present is the present (what I have been telling myself!), they both explained that I had been through a kind of trauma. Not the hospitalization itself, as my experience there was a positive one. But the very fact that I became so unwell and so unstable. I had assumed my inability to remember key parts of my hospitalization was due to being...well...mad ;) I had also assumed my somewhat flattened affect and reduced emotionality now was medication induced. But both are apparently symptomatic of those who have experienced some kind of emotional trauma. 

Now don’t get me wrong, I don’t feel traumatised. Not in the least. But I suppose that is part of what is going on. I don’t really feel any emotional response to what I have been through. It’s just something that has happened, no different to going to the shops for groceries. Apparently this will change, and my experience will become integrated with my sense of self.

Writing, talking to people, and my weekly therapy all help me piece together this puzzle of myself. It’s fascinating. I have learned more about myself in the last three months than I think I ever knew. I say now, and I will say again, that the experiences I have had (however apparently traumatizing they may or may not be) are one of the best things that have ever happened to me. I feel a confidence in myself that I never had before, and I have learned what is important in life. I’m happy being me, something I wasn't for a very long time. 

I assumed I had lithium toxicity when really it was the lithium I needed to become well. I assumed that a diagnosis of bipolar disorder was negative, when it resulted in an area of personal growth I may never have attained otherwise. It’s funny how something so potent, something so seemingly toxic can actually be the remedy.