Showing posts with label Hospital. Show all posts
Showing posts with label Hospital. Show all posts

Wednesday, 10 April 2013

Being Mummy


You are my sunshine, my only sunshine
you make me happy, when sky's are grey
you'll never know dear, how much I love you
so please don't take my sunshine away

From the moment I saw those two pink lines on a pregnancy test my life became about someone else. Was I eating the right things? Was I doing the right things? Should I rest more? Should I exercise more? And it doesn't stop there. I still worry about whether I am doing the best for him and I expect I will his whole life

Yet this parental worry is probably the reason I am still here today. On my darkest of dark days I would look down at the beautiful baby we had created and pushed and forced myself to get up, feed him, change him and hold him.  I told myself that the blackness was my problem, and David didn't deserve to suffer the consequences of it. He held me together more than any medication or doctor could.

Each time I felt like ending it all I would think of my beautiful baby, of him growing up without a mother and how that would affect him later in life. I would take a deep breath, and give my little boy a huge cuddle.

When it became clear that I needed hospital assistance I refused to go anywhere I couldn't take my little boy. I was so frightened of being absent during such an important stage of bonding. Whether that is admirable or foolish i can't say, but thankfully for me there was a mother and baby unit where I was able to take him.

One of the major things I worry about is that he will inherit my illness. Bipolar disorder has a large genetic component and often runs in families. We probably won't find out until he is in his teens...but on the small chance he does develop bipolar disorder I hope I will be able to guide him through it. Sun, storms, rain or shine, I'll always be there for you my darling David. My sunshine.












Wednesday, 3 April 2013

Cake, anyone?

Thought I would share a journal entry from when I was manic in hospital. It makes me laugh...

3/5/2012

To be honest, what the docs call my 'mania' is pretty damn fun. Well mostly. There are some unpleasant aspects to it. But after enduring months of that monstrous depression 'mania' feels good! I want to make a cake. I want to DO stuff.

I didn't realise what was happening until I was immersed in it. And once I was in it there was no way I wanted it to stop.

It started with lots of ideas. I couldn't


Yep. That's it. Couldn't even finish a sentence, never mind a journal entry ;)



Sunday, 24 March 2013

Clean

I am a fanatically clean person. Seriously, it's bordering on ridiculous. From an incredibly young age I would get up early to clean the family home (not that it needed cleaning!). I actually enjoyed...yes..enjoyed..boxing up everything in my room, vacuuming and cleaning the furniture and putting everything back. During my first couple of years of uni I used cleaning as a sort of reward system for studying. I would not allow myself to clean the house until after I had finished my allotted study for the day. The torture of having to study in an 'untidy' house propelled me into getting my work done in a productive fashion. It's actually amazing that I have been formally diagnosed with Bipolar Disorder as opposed to something like OCD ;)

Me...on an average cleaning day...;) 



So why am I telling you all of this?

Before I went into hospital my cleaning standards started to slide. Now don't get me wrong, our house never turned into something out of Hoarders...but it was untidy, for my standards anyway. I cleaned everything I needed to for my baby; his bottles, his clothes, his change table, his bowls. But I gave up on things that weren't directly related to him. What's even stranger than the fact that I stopped cleaning was the fact that I didn't care.

I started paying little attention to my personal grooming. Sometimes I didn't shower or wash my hair...I lived in tracksuits and slippers unless I had to go out. Now this isn't anything unusual for anyone who has just had a baby, but it was unusual for me. Even in the darkest most horriblest sicknesses I have always showered. God forbid I shouldn't wash my hair every day! So this was unusual behaviour for me.




So I wasn't cleaning, wasn't washing my hair regularly, wasn't eating and wasn''t sleeping. A few times a social worker came to visit me and I would tear around the house tidying before she came. I was convinced that if she saw the 'mess' I was living in she would take my baby away.

I think I collapsed once I was admitted to hospital. Tracksuits and slippers it was. Sometimes nurses had to remind me to shower. I was hospitalised, convinced the nurses were plotting against me, exhausted as all hell and frightened. My usual cleanliness just wasn't a priority.

But one day I walked into the hospital kitchen for a drink. There were no glasses in cupboard. At that moment I heard the dishwasher beep and I went to go and retireve a glass from there. I walked away and then turned around. The dishwasher was irking me. So even though it wasn't technically my job, even though they had an employee to do it, I started to unload the dishwasher. Then for good measure I reloaded it again and wiped the surfaces down. Satisfaction!

Later I went into my room. I HATED the particular bed sheets that I had that week. They looked disgusting, felt disgusting and were disgusting. Fed up, I went to get a nurse and asked if I could change my sheets. Astonished, the nurse went to the locked linin cupboard and I choose pretty new sheets. Bliss!

And so it went from there. As I healed I began to ease back into my former life. I cooked for the patients and staff. I started using my own cloth nappies and washing them at the hospital rather than using disposables. I cleaned my room every Sunday and changed my sheets. I started to feel like I was *doing* something once more. Like I had a very small purpose.

And somewhere a long the line I went from someone who was looked after in every sense of the word to a person who could look after another. I went from someone who couldn't be trusted to be left alone with a pair of nailclippers to someone who used knives, unsupervised, daily. I showered, I even shopped for new clothes, wore makeup and the nurses commented on how different I looked. But I didn't look different at all. I looked like me again. The way I was supposed to be.

Wednesday, 28 November 2012

Flashbacks and Nightmares


I keep having these flash backs. It’s strange. I’ll be going about my normal business when suddenly it will hit me. I’ll feel like I am *there* again. It’s not entirely unpleasant. But not entirely pleasant either. For the briefest moment I’m propelled back into the past. I feel it again, the blackness, in the pit of my stomach. But at the same time I know that I’m safe now. I’m OK now.

In one of the flashbacks I have just been admitted to hospital. I’m sitting on the bed, my head resting on my knees. I can’t describe how I feel. Relieved. Finally someone believes me. Finally someone is going to help me. Perhaps I have a chance. Perhaps I can keep going. But I’m so tired. I’ve held myself together for so long. Now that I’m safe, now that there are people looking after me I feel I may simply fall apart. Steven wants me to unpack my suitcase so I feel more at home. But I’m just so tired. I had to tell people today that I was going to hospital. I had to admit that I had a problem. I had to pack a suitcase not knowing when I would be home again. What if the people out there judge me? What if they think I’m weak.  A failure. Hospital is my last chance. My last ditch effort at saving myself. What if it doesn’t work? I’m so incredibly exhausted. I just want to sleep.

In another I am in the art room furiously painting a picture. I’m talking to my doctor who is carefully colouring in a stained glass window. I’m asking her if I am crazy. I had a dream about South Korea and the news article on TV was about South Korea. I walked in at that very moment. Surely that means something. Why would I dream about South Korea if it didn’t mean anything? I must be able to predict events. My dreams must be predictions. My dreams are important. I’m telling my doctor that I must be crazy. I must be crazy because of what I am thinking. I’m telling her how angry I am. She tells me this is the first time I have talked to her. Said something other than ‘I can’t keep going’. She says this is progress.

In another I am waking up from a vivid nightmare. I’m soaked in sweat, my hair sticking to my forehead. I’m hyperventilating. I want help but I remember I am on isolation and can’t leave my room. I can’t breathe. I pace around the room then spy the emergency call button. I’m just about to punch it with my fist when a nurse opens the door. I’m shaking and pacing as the dream haunts me. I trip over my dressing gown and the nurse steadies me. I just can’t breathe. I tell the nurse about my dream, how I need to put pictures of my loved ones on the wall. If I don’t put them on the wall they will die and I will be responsible. I could have prevented it. But I don’t have pictures, and I don’t have blue tack. The nurse doesn’t understand how important this is. She gives me some pills but I’m scared to fall asleep. She holds my hand and stays until I drift away again.

As soon as the flashbacks arrive they leave again, and I’m left with a strange sensation. No matter how I try to push the memories away they bubble up to the surface when I least expect them. Often things, moments, that I thought I had forgotten. A little reminder. A bitter aftertaste. A motivation to keep myself stable.  

Sunday, 4 November 2012

If It's Hurting Me...It's Hurting You

I realised today that I have written very little on my depression, the very thing that saw me hospitalised in the first place. From a creative perspective I find my depression very difficult to write about. Depression for me was bleak, cold nothingness. How can I begin to describe the pain of nothingness? I usually try to inject a little humour into my writing, in an attempt to make it more ‘readable’. But there is absolutely nothing humouress about this particular depressive episode. Nothing at all.

My depression was, and remains to be a uniquely personal experience. I rarely talk about it to anyone, including my nearest and dearest. I seldom like to think about it. Irrational as it is, I’m frightened that a thought could suck me down into the darkness again. Because this is the darkness that nearly killed me. This darkness was, without a doubt, the most horrific thing I have ever experienced.

I didn’t really cry much when I was depressed. I’m not sure that I even felt sad. I just didn’t feel anything. I was completely numb from my soul outwards. In a way this is what allowed me to carry on untreated for as long as I did. Robotically, I carried out everyday activities. I did the things I needed to do. I created a facade that I was fine.  

Occasionally I would break down, the numbness would melt away and all I felt was pain. Anger. Grief. Sadness. I started having panic attacks regularly and dosed myself on Valium until I had built up such a tolerance that the drug didn’t work anymore.

One day I was in a near car accident that would have been entirely my fault.  I wasn’t concentrating and made a stupid decision. Fortunately all I received was a loud honk and an angry gesture. Afterwards I felt completely calm, I felt no adrenaline rush, no guilt or remorse. It was then I realised how truly ambivalent I was. When faced with what could have been a serious accident, I felt nothing. I didn’t care whether I lived or died.

Eventually I began to give up. I stopped eating, stopped sleeping. Steven frequently had to leave work to care for David and I. I kept experiencing this bizarre sensation where I felt I simply could not keep going. I couldn’t take another breath. I couldn’t take another step. If I was out when it happened I felt I was going to physically collapse and someone would have to come and get me. They would have to come and get me and I would be stiff as a board, carried out on a stretcher, not even able to move my limbs. In a plea for help I started telling the people around me, over and over, “I can’t keep going. I just can’t keep going.” I think they interpreted this as “I don’t want to feel like this anymore.” When really what I was trying to say was “I don’t want to be alive anymore”.

I was consumed by guilt and a pure hatred towards myself. One morning I woke up, listening to the two people I loved more than anything in the world sleeping peacefully. I decided I needed to leave. I couldn’t do this to them anymore. They both deserved so much better than me.

So – out of pure impulse – I grabbed the first article of clothing I could find, a dress, and threw it on over my pajamas. I slipped some shoes on, quietly opened the front door and left.

Halfway down the drive I realised I was wearing odd shoes. So I slipped them off and continued to walk barefoot down to the road. When I got to the road I looked around. Now what? I had no money, no phone, no plan, no SHOES for Christ sake. What on earth did I think I was doing?

Defeated, I dutifully checked the post box and started walking back up the drive. On the way I passed a tree. One of those weepy trees with long concealing branches. Before I knew what I was doing I sat inside the tree, huddled in the dirt. Suddenly I felt safe. I could see people go past, joggers, people walking dogs, women with prams...but they couldn’t see me. I felt like a child once more.  On the off chance that someone may see me I concocted a story where I was doing some weeding. The fact that I was in a dress, with my pajamas visible, barefoot, with no gardening implements in sight didn’t really concern me.

Suddenly our front door burst open and I heard Steven running down the drive. When I saw him he looked absolutely frantic.

“Steven?” I called out. He stopped. Looked around, clearly confused, then spotted me under the tree. He paused for a moment and then parted the long branches.

“What are you doing under there?” He asked calmly.

“Just...sitting” I said nervously. At this point I knew I had screwed up. Big time. Wordlessly he held out his hand. I hesitated and then took it, climbing out from underneath the tree. We walked back up to the house and I tried to explain that I felt safe there, that I wasn’t going to do anything bad.

Steven just turned to me and said “do you have any idea how worried I was?! Don’t ever do that to me again. Ever.” I cried, told him how sorry I was. He just nodded and walked away.

I felt truly terrible. I realised what it must have looked like to him. My phone still at home. My (odd) shoes left in the middle of the drive. I realised that this couldn’t go on.

When I went into the bedroom Steven was laying face down on the bed. I apologised and we held each other. I saw that he had been crying, or at least close to it. “do you think I’m bad if I go in to hospital?” I asked him. He looked at me “Quite frankly, I think you would be selfish if you didn’t go in and continued on like this” he said.

Suddenly I realised the effect that this must be having on him. Working fulltime, constantly on edge that he was going to get a call from me saying that I need him. Coming home and cooking dinner every night, feeding and bathing and putting David to bed. He had come to appointments with me, taken me to hospital, taken days off work to look after David. He had never once lost his patience with me. This man is a saint. I realised that he looked tired. I had been so consumed with my own despair that I hadn’t even considered him.

I realised my problem, my illness, was hurting him just as much as it was hurting me. I vowed to put an end to this. I decided I needed help. I made the decision to go into hospital.

Monday, 15 October 2012

Group Therapy


As a psychology student writing a thesis on group processes I suppose it was only inevitable that I became quite interested in our group in hospital. Eight mothers with serious mental health issues living together must surely result in some friction. But no. In the eight weeks I was there I don’t recall any altercations or even complaints between patients. Remarkable really considering the stressful circumstances. Then again, perhaps we just took it out on the staff.

When I was first admitted I was scared of being out in the public areas. I stayed in my room and avoided other patients (my fearfulness was probably not helped by the community psychiatrist who saw me prior to my admission and told me that the MBU was “not a place he would want to be”, and that it was full of patients who were so far gone that they “would think you were a martian”). At the beginning of my stay there were quite a few younger patients my age, and after a while I began to sit near them. I enjoyed being part of their group, but not necessarily having to contribute to any conversations.

One day I found some knitting needles and a ball of wool. I found knitting really helped with my agitation level. I was knitting away, eavesdropping as usual, when one of the girls asked me where I found the wool. It was one of the first times I actually conversed with another patient. Before I knew what was happening I was teaching her how to knit, and the other patients wanted knitting needles as well. For a few weeks we would spend the evenings knitting and chatting and watching TV. Sometimes nurses would ask us what we were knitting.
“I’m knitting my baby a hat!” said one patient.
“I’m knitting a scarf.” Said another.
“I’m knitting something which shows that we are not perfect because nobody’s perfect, and you can see this has holes so it’s not perfect, because none of us is perfect and that way it’s not a lie....” said another girl.
“I don’t know.” I said.
But all in all we were comfortable with each other and any eccentricities we may or may not have. We were readily accepting of each other.


Then one day one of the girls had a meltdown. I can’t remember the specifics of the situation but there was lots of shouting and crying going on. Eventually two burly security guards were called to control the situation. Predictably, in my delusional and ever egocentric state I dissolved into tears as soon as I saw the guards. “They’ve come for me!” I cried.

There was chaos after that. Everyone was upset. Afterwards most of us went to our rooms and stayed there. The whole weekend was horrible. Nobody talked to each other. Everyone was in a bad mood. I suppose the incident with security reminded us about where we were, and how easily our control could be taken away.

Later on in my stay I was part of a different group of women. But these women were very depressed and rarely talked. As a group we sat silently at the dinner table eating. No knitting here. One day a younger girl arrived. Despite her problems she had the most remarkable sunny personality. People couldn’t help but open up to her. No matter how you presented, or what you looked like, she would come over and have a chat with you. She asked us to join her when she walked to the shops, or baked a cake. We started taking an interest and talking to each other. All it took was one person to make us a group again, rather than eight individuals.

Perhaps, though, it was the stress of the situation that brought us together. Ever been to an exam and suddenly people you haven’t talked to all semester start conversations? Or witnessed a shocking incident in public, and suddenly you are talking to all the strangers around you? It’s cohesion. It’s solidarity. It’s “us” against the exam, the bank robber, the system, the “them”. It’s only natural really. 

And you don’t mess with the people who are on your side. You don’t fight with your own team. I felt both joy and sorrow with every discharge from the hospital. Happy that they were feeling better, sad that I wouldn’t see them again (and that I wasn’t the one going home!). I felt apprehension and curiosity with each new admission. Would they be nice? What will they be like? But most of all I felt a sense of comfort that there were others who were going through this too. That I wasn’t alone. And maybe, just maybe, if they had been able to get to a point where they were doing well – perhaps I would be able to as well.

Monday, 8 October 2012

Cabin Fever

Around the seven week mark I came down with a little cabin fever. One morning when the familiar bell sounded for meditation, I literally groaned out loud. I had been there so long I knew every single meditation tape off by heart. Plus, my baby had just gone down for a nap. I didn’t want to spend my baby’s precious nap time meditating!

So I hid. And believe me, hiding in a psychiatric ward is a remarkably difficult thing to achieve. I heard the nurses calling for me and looking for me but I stayed hidden until the coast was clear. Later on, a nurse found me in the art room and asked what I was doing. “writing.” I told her nonchalantly. She wasn’t impressed. I found out later that the nursing staff got into trouble over my antics that day. Something I still feel bad about!

That evening in the living room I whispered to Steven; “you have got to get me out of here! I can’t stand this anymore! This whole place is bullshit!”
“You know I can’t do that,” he told me.
“Yes you can! Just sign me out. I’m better and I just can’t stand this!”
“No. I can’t do that. You will be discharged when you are ready.” He told me again. I pouted.
“I could run away, you know.”
“Oh yeah. And how would you do that?”
“I could jump the fence. Go for a walk and just .... not come back?”
Steven snorted. “You? Jump a fence? Besides, you know what will happen if you try anything stupid.”

Boy, did I. After prowling the perimeter, searching for any weak points and coming to the disappointing conclusion that the unit was unequivocally escape-proof, I had asked a nurse what would happen should I try to run away. Her face grew very grave and she assured me that police would be sent to find me, and that I would be transferred to a more secure facility without my baby. As much as I wanted to be back in the outside world I knew an escape would be stupid. I have never felt so trapped in all my life.


Steven tried another tactic. “What is it exactly that you don’t like?” he asked.
“The food! The beds!  Night checks! Stupid meditation. How I can’t go out for a walk without signing a million documents. My room, God, I hate my room. The fact that every time I want to shave my legs, or charge my phone, or dry my hair, or wear my shoes I have to go and collect them from the nurses station. It’s ridiculous!”
“Why don’t you just ask for that stuff back?” Steven suggested. I was stunned, that thought hadn’t even occurred to me. So I marched to the nurses station and asked. To my amazement, after a quick call to my doctor, my possessions were returned to me. I squealed,  it felt like Christmas.

The next day I decided to ask my doctor if I could move rooms.
“What is it about the room you don’t like?” She asked.
“Just everything. This is a ‘special’ room and I’m not on ‘special’ anymore. It just has horrible memories.” I replied. My doctor looked thoughtful.
“You’re right. You’ve been in here a while and I think a change would do you good. How about we leave this room for another ‘special’ person?” She said with a wink.

And so I was moved to room number five. The medical team interpreted my restlessness and eagerness  as a positive sign that I was on the mend. As such, after another week of tentative home visits and discharge planning I was finally released. Ironically I only spent 5 nights in my new room before I fell asleep in my own bed. Ready for the next chapter in my life. :) 

Tuesday, 2 October 2012

Just a little patience...

I’m not a patient person. I’m really not. I’ve tried – believe me! But patience really seems to be a virtue that I don’t have.

Don’t get me wrong. I can be patient with people. Or with animals. But when it comes down to tasks, work, ideas and such, I just can’t seem to wait. I want things done now. No, I want things done yesterday.

I’m the type of person who, mid lunch, decides a yellow wall would look good in the dining area. I’m the type of person who leaves her lunch, goes out, buys gallons of yellow paint, and sloshes it onto the wall before her husband even comes home from work. “Surprise!” I’ll say, before telling him to stay out of the way because “I will do a better job”.

Steven calls me impulsive at best, occasionally silly, and always impatient. You see, Steven is the opposite of me. He’s methodological. Calculated. Careful. He spends months researching things before buying them. I can’t be bothered with doing all of that!
Anyway, where am I going with this?

If there is one thing that I have learned over the past 12 months, it’s that when you are a patient in hospital, you have to be exactly that. Patient. You wait to be seen, wait to be admitted, wait for a diagnosis, wait for a treatment plan. The waiting is seemingly endless.
When I was in the MBU I remember complaining to Steven one afternoon that I wanted to go home. I was so homesick it hurt. I’d had enough. “You need to be patient!” Steven told me. “you can’t expect things to change overnight.”

“But I’m not a patient patient!” I complained. “In fact. I’m an impatient inpatient!”
A few nights ago I ended up in hospital.  It was a combination of a nasty virus and severe dehydration – probably not helped by the fact that I had unknowingly taken medication which interacts with lithium. It was a long night for both Steven and I, longer for him though, it would seem.  I was surprised when I did the math. We were in hospital for around 12 hours. 4 of those hours were spent waiting in the emergency room. Add on perhaps another 1 hour for seeing the doctor and getting hooked up to an IV. That leaves SEVEN hours unaccounted for.

I asked Steven what I was doing, and he said that I was asleep.  Not surprising after a combination of narcotics, sedatives and anti-psychotics. The point of this is that my poor Steven waited for seven hours in an uncomfortable plastic chair by my bedside, without a single complaint.

You see, patience isn’t the ability to wait. It’s the ability to wait without complaint. And boy, this man has patience.  Through depression, through mania, through sickness, through hospitalisations, through psychosis and everything in between he has never complained. I wish I had the patience that he possesses.
It never ceases to amaze me the love and support that this man offers me. He lights my way through the darkest of days. He holds me down lest I fly away. He is always, always there for me. My best advocate, my greatest support. 

So Steven, I hope you understand that words are inadequate in describing the length and the breadth and the depth of the love and adoration I have for you. I know sometimes I am infuriating. I know that sometimes it may not seem like I appreciate you. But please, please know that I always love and adore you. I hope you know that I can never understand what you have been through – for in some ways I believe this can be harder for the supporter than the patient  - but I appreciate it more than I can ever describe. Every day I wake up, thankful that I have you standing by my side. Thank you for everything, my love. You are my world.


Saturday, 22 September 2012

Traces of Nuts

The first time I was hospitalised, when I was about 17, I started hearing voices. Well, to be more specific I started hearing a robot voice.

I tried to ignore it at first. Get on with things. Go about my business. But this robot voice was every where I went. In my room, in the dining area, in the halls. This voice was starting to (if you’ll excuse the irony) drive me completely insane. I began to feel more and more dejected. Here I was. In a psychiatric institution. Hearing voices.

Then I became angry. I couldn’t even understand what the damn thing was saying.  I couldn’t even be a normal crazy person.  Someone who could actually understand their stupid voices. This is ridiculous!

One day I was waiting for a group session to start when I heard the robot talking again. I decided I had to settle this matter once and for all. I turned to the guy next to me and asked him:
 “Did you just hear that robot voice?!”
He looked vaguely startled and looked around. “Robot voice?”
“There it is again!” I exclaimed. “See! That robot voice! Please tell me you can hear it! I’m being driven insane. I know I shouldn’t say that here...but seriously....can you hear it?”.  
It was then that he burst out laughing. “That’s Harold!” he told me, in between snorts. “He’s had a tracheotomy, he speaks through a tube. I guess he does sound a bit like a robot.”
We were both silent for a moment. “Well that’s a relief,” I finally said. “For the last week I have been convinced I was hearing robot voices”.

Oh we laughed and laughed after that. I felt a huge range of things. Guilty for starters (poor Harold!), embarrassed, but most of all relieved. THANK GOD! I wasn’t crazy. Well, at least not in that way.
But this experience got me thinking. What is crazy anyway? Do you know if you are crazy? I’ve heard that the craziest people often believe they are sane. But sane people can think they are crazy too. Are you crazy if you are sane but think you’re crazy? Who defines it? Where is the line between crazy and sane?

One day, in the MBU, I was trying to make some lunch for David. Another patient was experiencing a manic episode and was pestering me, talking a mile a minute, following me around the kitchen. In between peals of laughter she managed to say “wow! You must really think I’m crazy!”
“Yes,” I responded rather grumpily. To my surprise she just burst out laughing again.
“That’s because I am!” she sung, before waltzing outside to the garden.

She certainly thought she was. Did I think I was crazy? I’m not sure. Do I now? I don’t know. What I do know, is that the deterioration of mental health results in a need for intervention. Some people resist it, but I was open to it. Perhaps that was the sanest part of my condition. I believe that everyone has their own eccentricities, some are just more obvious than others. I believe eccentricities need only be a negative thing should they threaten the wellbeing or reputations of themselves or the people around them.

Although I can’t define what I was before, at this point in time I’ll conclude that for now I’m swinging around the ‘normal’ end of the continuum. Normal. With traces of nuts ;)



Thursday, 20 September 2012

Girls, Interrupted.

Having spent a fair amount of time at the MBU, I was able to see many different women come and go. As much as I was happy for the women that were discharged, I was hit by unexpected jealousy as well. Jealousy and then self incrimination. “What is wrong with me?! What can’t I get my act together and get better like everyone else?!”.

But aside from that, what struck me was just how different we all were. I began to see that postnatal mental illness spared no one. No cohort, no demographic group, nobody. There were older women, first time mums, black women, white women, Catholics, Muslims, professionals, teenagers, city women, country women, single parents, smokers, vegetarians and everyone in between. This is why I feel it is so important for EVERYONE to be aware of mental illness, particularly in the postnatal period. You never think it’s going to be you. Your partner. Your daughter. Your mother.

Anyway, although I was in the MBU for a significant amount of time, there was one woman, let’s call her Sophie, who had been there longer. We didn’t really speak much, but we were always kind of aware of each other. Every time I had a meltdown I’d glance around and see her in the background, pretending to ignore me. But that’s ok I pretended to ignore a few of her outbursts too.

One night, increasingly frustrated by my lack of sleep, I stormed out to the nurses station to try and get some sleeping pills. Sophie was waiting there too and we awkwardly stood next to each other for a few minutes.

Finally Sophie asked: “can’t sleep?”.
“What’s sleep?” I replied with a wry smile. Sophie laughed and then gestured to our dressing gowns.
“We should swap” she said. I looked down and noticed we were both wearing purple gowns. She was short in stature and wearing a long gown trailing the ground, I’m tall and was wearing a short gown cropped below the knee. I laughed and then saw the nurses arriving back at the station.
“You should take this,” she said, thrusting a magazine into my hands. “If you can’t sleep. It always helps me sleep.”  I thanked her. I was willing to do anything to get some sleep, and read whatever this magazine may be.

Later back in my room, having been denied medication, I took out the magazine and started to read. And would you believe it? I actually fell asleep! I kept it in my room for emergencies. Nightmares. Insomnia. It was a first aid kit for the weary. When I left the MBU I made sure to leave my magazine on the nightstand, just in case someone else should need it.

Sophie and I were both discharged within days of each other. I still think about her a lot, and I hope that she is doing well.

The magazine? It turned out to be a Coles advertising booklet. Perhaps it was the boredom of reading it that worked so well for us. Or perhaps it was just the comfort of knowing someone else was going through the same thing. Either way, I do remember having a fair few dreams about cooking... ;)



Tuesday, 18 September 2012

What's your status?

Yesterday, during an appointment with my psychologist at the hospital, it came to light that I was apparently an involuntary patient under the Mental Health Act for a period of time during my hospital stay. To say I was surprised is an understatement. I assured my psychologist she was mistaken, until she read out my file notes from my doctor at the MBU.

“Rachael was an inpatient at the MBU for two months, much of the time under one to one supervision and under the Mental Health Act”.

The thing is, I don’t remember that at all. I remember being threatened with the Mental Health Act should I worsen, resist treatment or abscond. But that’s about it. Other patients who were of involuntary status seemed to be aware of it. I certainly wasn’t. 

But then again, I wasn’t aware of much. I wasn’t aware that I was on one to one supervision until one day another patient asked my nurse for something. My nurse declined and the patient glanced at me and asked “oh, are you still on one to one supervision?”. It was only then I looked around and realised that I was the only patient with a nurse chained to my side all day. For most of my time in the MBU, the unit was in 'lockdown'. I didn't even realize that the unit could be unlocked until the end of my stay. It was only at then that I realized that the  lockdown  everyone complained about was initiated because of me (along with another patient). Sorry guys! 

The fact that I had psychosis adds another layer of complexity to the whole issue. Trying to piece together fragmented memories is difficult enough, but trying to remember when you are not even sure what was real and what wasn’t is nearly impossible.

I spent a few hours yesterday afternoon researching the matter. Trawling through pages and pages of government documents, searching through the endless 1996 Mental Health Act, trying to find anything that would give me some answers. Surely I would need to fill out a form? Or Steven would need to be aware?

My search was inconclusive. The complexities of the system are really beyond my patience. Is written evidence from my doctor enough for me to believe what happened? It should be, but somehow it’s not. A written report should stand firm against the unreliable memory of a psychotic patient. But this is me, not just anyone. Surely I should remember something.

I know that most people reading this will think ‘well what does it matter?’ I went into hospital, I came out of hospital, I’m feeling better, are the specific details of my stay really that important?

But to me they are. To me there is a big difference between seeking help voluntarily, and being treated as an involuntary patient. The legalities of my treatment matter. What happened to me matters. But most of all it matters that I can’t seem to trust my own memories and recollections.

Who do I believe? Me or them? Who do you believe?

Wednesday, 29 August 2012

No Such Thing as a Free Lunch...

Today marks the end of my journey with the Mother and Baby Unit. My doctor saw me as an outpatient for a number of months following my discharge as she wanted to make sure I was doing ok at home. But David is now one, and I have been stable, and it was time to be referred back to my local mental health team.

Today was the day I was to have an appointment with the new Psychiatrist that was going to be taking over my care. I wasn’t looking forward to it. Due to the experiences I had before my hospitalisation I am wary of medical professionals – particularly those in mental health. Would they take me seriously? Would they screw around with my medication? Would they be nice?

Furthermore, my appointment was at my local hospital whose service has not impressed me over the past 18 months. This is the hospital where I was told (in the midst of a mixed psychotic episode) that I didn’t need hospitalisation, only a good night sleep. Indeed it is the very same hospital that I called during my labour with David, only to be told to take a Panadol and have a bath. It’s a good thing that we ignored that advice, because when I arrived we found out I was half way to having a baby, and the contractions were coming quick and strong. Naturally the birth suites were full, and I needed to be transferred to a different hospital, but the doctor was then concerned that I wouldn’t make the ambulance ride. I was told I may have to deliver in the waiting room, with no epidural (“this was not in my birth plan!!!” I couldn’t help thinking ;)). Fortunately for everyone my labour stalled, I was successfully transferred to a different hospital and I even got an epidural. No thanks to my local hospital though. Do I sound resentful? Perhaps a tad ;)

  Anyway. Back to today. I went to the appointment feeling rather stand offish and cross about things. I was on the offense and I wasn’t afraid to let ‘them’ know about it. The doctor called me up by my middle name, which wasn’t a great start. But there was something profoundly kind about this woman, and for the life of me I couldn’t stop myself from telling her everything. To open up to someone so quickly is very unusual for me. I talked and talked so much that when Steven came to pick me up my voice was hoarse. Ok, so admittedly I am still recovering from laryngitis...but you get the idea ;))

At the end of it she asked me how it had been. I was honest with her and told her that I had had deep reservations about coming, I told her about my experience with the other doctor. I explained to her that when I am depressed I don’t tend to show the emotion that other people seem to. I don’t tend to cry or even talk much. I will just state that I feel depressed, and because actions speak louder than words, I didn’t seem to receive the help I needed.

To my surprise she told me that she had dealt with many individuals that show little emotion, and that ‘Depression’ is about far more than feeling sad. She told me it was about an inability to sleep, to concentrate, to make decisions, to engage in life. She assured me that she was taking me seriously, and from her notes from the mother and baby unit and from what I had talked about she felt that I had been to hell and back. She told me how sorry she was that I had been through this, and how sorry she was that their service had let me down.

I think that’s what I really wanted. To tell someone at the hospital what had happened and for them to acknowledge it. I hope that by telling someone, perhaps someone else out there won’t slip through the cracks. Not everyone who needs help wears their heart on their sleeve.

All in all I feel good about the appointment. My new doctor is lovely, and I’m confident that with time I will trust her in the way I trusted my old doctor. To my surprise I was also given a medication voucher for the pharmacy, so I can get all my medications for free! This was a huge relief since we were paying almost $100 a month on pills.

 To be honest with you, although I have had some bad experiences with our mental health service, I’ve had some really good ones too. The hospital and all of my doctor and psychologist appointments have been free of charge. I received free childcare and now free medications. People say there is no such thing as a free lunch...but I guess sometimes there is. And I know I’m grateful for it! :)



Friday, 6 July 2012

My Mania


I have put off writing about my manic episode for a while. For starters my mania, I find, is very hard to write about. How can I begin to describe an experience that was so fast and loud and bright? It’s hard to remember, let alone describe, in what order events occurred. And can I even rely on my recollection of events anyway? I’m not sure. Steven and I joke a lot about this particular manic episode. But in no way do I mean to make light of manic episodes. I was in hospital, safe and protected from any kind of danger. In other words, I was lucky. Manic episodes can be extremely dangerous. Indeed I fear mania far more than I fear depression. This was not my first manic episode, but it was the most extreme episode I have experienced. It all started one morning when I woke up with a ZING! The first thought in my head was “I’m cured!”


I felt good. Better than good. Brilliant! For the first time in months I had energy. The blackness had gone! I had ideas and plans racing around in my head so quickly that I could barely keep up with them. I called Steven at the uncivilized time of 5:50am to tell him that I wanted to go to a restaurant and bake a cake. Afterwards I bounced out of bed and raced in to tell the nurses that I had been cured. I then informed them that I wouldn’t be attending meditation that morning, because I didn’t want to sit still. I had decided to go for a walk instead. My nurse that morning wasn’t terribly impressed warning “don’t get me into trouble Rachael!” as I waltzed out the doors. 

I   got no further than the park next to the hospital. The trees, the leaves...everything was so beautiful. I couldn’t believe I hadn’t noticed it before! I lay down in the grass under a tree marvelling at the beauty that was surrounding me. The feel of the breeze on my face, the grass under my skin, the sun...the beauty was literally overwhelming. Finally I stood up and made my way back to the unit. I was so focused on the beauty around me that I very nearly got hit by a car.

Back at the unit I started to tell a student nurse about my experience. Well. ‘Tell’ is a nice way of putting it. The clinical term for it is ‘pressured speech’. I myself prefer ‘verbal diarrhea’. I talked and talked and talked, not pausing for a breath. I told her about the trees, and the leaves, and how I wanted to write a book, and where I wanted to travel..and...and..and...and! I’m sure she was cursing the moment she had initiated a conversation with me. But she was far too polite to tell me to shut up.


It was then time to see the doctor. I sat down on the sofa and waited until I had the attention of both doctors and my nurse before dramatically proclaiming “I’m cured!”.  Then I talked and I talked. I remember at the time watching all three of the staff looking at each other, raising their eyebrows. But I didn’t care. I was having a fabulous time holding court.  And man, I had some interesting stuff to say!


 When my doctor was finally able to interject, she told me that I seemed to be  ‘high’. I agreed and told her it was fantastic, before launching on a rather random tirade about how I should have never been put on ‘special’ supervision. I think after a while the staff  realised that it was absolutely pointless to try and have a sane conversation with me. It was at that point that my doctor snapped my file shut and turned to the second doctor. “I’m canceling leave”. She said firmly. I was devastated, I had been supposed to go home that weekend  for leave. I burst into tears, I pleaded and begged, but no amount of tears were going to change my doctors mind.

After the appointment I decided to call Steven to tell him the tragic news. What I wasn’t expecting was:
“GOOD! I’m glad they cancelled leave. I’m not saying you have Bipolar, Rachael, but there is something not right about you at the moment.”

Yeah, that pissed me off. From that moment on I started waging a war. A war of ‘us’ against ‘them’. And in my opinion Steven had very firmly planted himself with ‘them’.


At this point I must say that the nursing staff in that unit must have the absolute patience of a saint. From this point on I became, for lack of a better term, a thundering pain in the neck. Someone who can’t sit still, can’t concentrate on any activities, doesn’t sleep and won’t shut up is annoying enough. But someone who does all of this in addition to making it her mission to antagonise as many people as possible must have been a complete nightmare to deal with.

I went to group and attempted to derail the topic of conversation with inane questions and comments. I interrupted private conversations between staff and patients to have my say. I concluded that some flowers that were delivered to the hospital were evil, and asserted this to everyone who commented on how nice they were. And Steven, poor Steven, I took my frustration out on him the most. I’m not surprised that he was glad that I was not coming home that weekend!

As the days went on I just seemed to get higher. I didn’t seem to need to sleep, I didn’t feel hungry. I felt sexy, and confident,  powerful and in control. Given my lack of need for sleep I  started to suspect that I was, in fact, superhuman.

 I was allowed home for an hour or so and I selected a short little dress to wear (I hadn’t thought to bring cocktail attire to the hospital). While at home I put on some music, took off all my clothes and danced around the house. Unsatisfied with this I decided I should go out to the street and dance naked in the rain.  Surprisingly, I felt, Steven was less than impressed with this idea and decided it was time for me to go back to the unit. I then refused to put my clothes on until Steven started dialing my doctors phone number. Beaten, I put my little dress back on again.

But what goes up must come down, and come crashing down it did. Back at the unit I held my crying baby, trying my best to comfort him. Tears ran down my cheeks as I watched him cry, all I wanted to do was help him. Steven saw that I was getting upset and offered to take David from me. Something flipped inside me and I became angry, telling him that “I was his mother, I should know what to do”.

Sensing that things were escalating Steven left then returned with two nurses. I shouted at them to stay away, they tried to take David away, but I held onto him. Finally the nurses grabbed my arms, physically restrained me and took my little boy away. I know that I was aggressive and out of control, I know that the nurses did the right thing, but I will never ever forget the feeling of my baby boy being ripped from my arms. My heart shattered into pieces.

I was then, quite literally, frogmarched into my room to be shouted at. Finally I was left alone and I cried and cried and curled up in a ball on my bed. After a while the nurse came back and invited me to come out of my room, I declined. She came back again and again, trying to tempt me with hot drinks, movie’s on the telly and coming to see what my baby was doing. But I was terrified of leaving my room. I was so embarrassed, so humiliated of all the silly things I had said and done. I didn’t feel powerful anymore, I felt tiny.

But eventually I tiptoed to my door and looked down the hall. Steven was standing there holding David, he grinned at me and beckoned for me to come and join him. Taking a deep breath I left my room and slowly walked towards him.

“I’m so sorry” I said, both to him and to David. He could have embarrassed me, or told me off, said he was ashamed of me, he would have the perfect right to have done any of this, considering the way I had treated him. But instead he just said the three words that I desperately needed to hear.

I love you.





Tuesday, 12 June 2012

April 10th, 2012


Today I thought that I would share one of my more coherent diary entries from when I was in hospital. This was written on the 10th of April, 2012.

3:30am and I’m wondering, yet again, if I can do this.

You don’t know what it’s like to be a psychiatric patient until it happens. Here everything has the facade of being a friendly family oriented institution. But if you look past the queen size beds, comfy couches and children’s play equipment, it is still a psychiatric institution where they have control, and you do not. 
You have ask to shave your legs here, so eventually you stop bothering. You have to ask to dry your hair here, so eventually you stop caring. Every time you go out you have to complete a ‘risk assessment’ form, where the person accompanying you is referred to as your carer and has to take full responsibility for your actions (because you are not deemed responsible enough to take care of your own actions). Your room has a low water temperature, a peephole on the bathroom door, and a window on the door. And don’t forget the locks.

In two days I will have been here for four long weeks. Four weeks of waking up alone, without Steven there. Four weeks of crying every single day. Four weeks of strong medications...yet not being able to sleep. Four weeks of being cocooned from the outside world.

I felt ‘stoned’ yesterday. That’s the only way I could describe it. My pupils are huge. Everything is overwhelming. The colours. The brightness. Sometimes I look around and feel I will physically collapse because there is just SO much. Doctor said it’s a medication hangover. Bloody Zopiclone. I refused it tonight....which is why I’m awake. It’s a no win situation. I don’t sleep, I get worse. I get worse, I don’t sleep. I take sleeping pills, I don’t sleep. I take Zopiclone, I sleep but feel awful the next day.

Diazapam, Lorazepam, Olanzapine, Quetiapine, Phernagen, Lexapro, Desvenlafaxine....this is my language now.

 Steven keeps telling me to take my time. That he would rather I stay another week than come home prematurely and be re-admitted a month down the track for another three weeks. I know how hard it must be for him. He goes from home to work to the hospital then home every single day. Some days he doesn’t even have dinner. But he never ever complains.

The thing is, I have been trying hard, I really have. I WANT to get better. I’ve done the meditation, the CBT, the medication. Yet something is just.....not right.

God, I’m so sorry.

Sunday, 10 June 2012

Isolation


Unfortunately, around 4 weeks into my stay in the hospital David and I both got a mild case of gastro. I casually let one of the nurses know what was happening and suddenly there was an almighty commotion. A decontamination station was set up outside my room, nurses practically donned hazmat suits to come and talk to me. I was highly amused by the bright yellow “Clinical Waste” bag I was supplied for David’s offensive nappies. It’s not often you put your baby’s nappies into a bag with what looked to be the radioactive symbol on it!

But my amusement quickly faded when the doctor  broke the cheery news that David and I were to be isolated to my room and the adjoining living room for the next 48 hours. At least.

“You’ve got to be kidding me!” I complained, watching my child rampage across my room, shrieking with delight. I begged to be sent home instead but was deemed too unstable for leave. I spent the rest of the afternoon racing between my toilet and my baby, whose main symptoms seemed to include an adamant refusal to nap and despicable nappies which filled my room with the most noxious odour.

Now forced isolation for a few days may sound somewhat pleasant to some people. I mean, I had a bed, books, a TV and my own private outside area. Someone brought me my meals every day. But I can assure you that forced isolation trying to entertain a bored sick roommate who continually cries, grizzles, and attempts to destroy your belongings must surely be a new level in hell. On my third day out of pure desperation I flagged down a nurse and said “You have got to take him for a little bit before I...” (I had been about to say “before I kill myself” but then realised that was probably not the wisest thing to say given my situation) “before I lose my temper”. She took pity on me and with a sigh of relief I turned on the TV.

About half an hour later the nurse came back and accused of watching pornography.  I  assured her that I had only been watching an episode of ‘How I Met Your Mother’ and that pornography was, quite frankly, the very last thing I felt like watching at this current point in time. But I didn’t have a good feeling about watching the TV after that incident.  

Finally on the late afternoon of my third day my psychologist came to release us. David and I flew out the door joyously. Even better I had a psychological testing session so I was taken for a walk next door while David was cared for by the nurses. Usually these testing sessions bored me, but today it was positively luxurious. Freedom!

It was heavenly going to make myself a cup of tea, watching David happily crawl around outside, actually having adult conversations. As I went to bed that night I vowed that I would never ever complain that I felt restricted in the unit again. Who cares if other women were allowed to go for walks and I wasn’t. At least I could walk to the kitchen! Who cares if the food is crap. At least I could choose it! With a newfound appreciation for what I did have, I stopped complaining.

Well...for a few weeks anyway ;)

Thursday, 7 June 2012

A Mixed State


I just couldn’t stop moving. I tossed, I turned, I paced, I jittered. I got up in the night to pace. I wrung my hands and jogged my legs and drove everyone around me up the wall.

“Stop! Tell me what’s bothering you.” Steven would say. “I don’t know!” I would reply. 

“Stop! Take some deep breaths and try to keep still” My doctor would say. “I can’t!” I would say, before pacing around the room again.

It had begun about a week before I was admitted to hospital, and it was unlike anything I had ever experienced before. In my experience, depression is accompanied by lethargy. A complete inertia and apathy towards life itself. You don’t want to *do* anything when you are depressed. Merely getting up in the morning is a mammoth task. 

But this wasn’t like that. I was acutely depressed. Suicidal. Hopeless. Yet, for the life of me, and despite the plethora of psychoactive medications I was offered, I just couldn’t stop moving.

I was moved to the most secure room on the ward. The bathroom door had a peep hole. This disturbed me. Though looking back the peep hole should have been the least of my concerns. Under ‘special’ supervision a nurse was required to be present every time I used the bathroom anyway. Although I was admitted to hospital as a voluntary patient, I was informed in no uncertain terms that if I were to attempt to leave the premises I would be sectioned under the Mental Health Act. 

One morning I woke up to find three nurses conducting what appeared to be a sweep of my room. “We’re just giving your room a bit of a clean” they told me. “Umm, okay then” I said. I didn’t really think much about it until I had my shower and wanted to dry my hair. My hairdryer was gone, and when I questioned the nurse about it she told me it was for my own protection. On closer inspection I noticed that all my power cords were missing as well as my shaver, scissors and nail clippers (ok fair enough), dressing gown cord (lethal weapon there...) and my shoes (seriously?!). Steven later told me that women’s bra’s are often removed in institutions. How he knows this I’m not entirely sure. Thankfully my underwear was left safely in my drawer. Small mercies! 

Although I understood that the hospital was taking my safety into their own hands, I wasn’t entirely sure why. I mean, I knew I was suicidal. I knew I was severely depressed. But most of the other women in the ward were depressed. Yet they didn’t need a special room, or 24 hour supervision. They were allowed to go for walks alone, and wear dressing gowns with a cord. On a few occasions I felt angry about this perceived inequality, sometimes I felt upset. But mostly I was so depressed that I just didn’t care. I didn’t care that my rights, dignity and privacy had been taken from me. It just gave me one less thing to think about.

All of this happened well over a month before the manic episode that confirmed my diagnosis of bipolar disorder. But at this point in time the doctors were already suspicious that I had bipolar. You see, somewhere in between mania and depression there is a strange phenomenon clinically termed a ‘mixed state’. You have symptoms of depression and of mania at the same time. The agitation of mania without the euphoria. The chronic low mood of depression without the apathy. A mixed state is one of the most dangerous psychological states to be in, and many suicides associated with bipolar disorder occur during a mixed state. Somewhat ironically, the lethargy that accompanies depression acts as a  kind of safety net. A depressed individual may simply not have the energy to execute a suicide attempt. During a mixed state individuals are seriously depressed, but fuelled with energy – a deadly combination.

What I know now is that I was experiencing a mixed state, and this went on for many painful weeks. No amount of anti-psychotic or anti-anxiety medication dampened my agitation. No amount of anti-depressants lessened my depression. I barely slept, despite the copious sleeping pills I was offered.  My son was almost exclusively cared for by the nurses and my husband. To this day I have very few memories of this point in time and rely on my doctor’s and husbands recollections of how I was.

A mixed state is such an appropriate term. Because I really was mixed up, and I really was in a state. I was experiencing symptoms of depression, mania and psychosis all at the same time. I couldn’t explain my past and I couldn’t think about the future. I wanted to live, but I wanted to die. I wasn’t sane but I wasn’t crazy.

While I was in hospital I marvelled at my baby boy’s development. I watched him pull himself along on the floor, start to crawl, and finally pull himself up to stand. And as is the way of things, the mixed state passed, and transformed into something else completely. I was taken off ‘special’ supervision and onto 15 minute checks, and then half hour checks, then hourly. Soon I even got to go for walks, and was moved to a different room (without a peephole!).  Then finally, like my son, and with the encouragement of Steven and the medical staff, I reached up and stood on my own two feet.